Need your help: MDA fundraiser.

pwhitby

RC Sponsor
Team RC
Several days ago Leighanne of Aquariums contacted me to let me know about a fundraiser she is putting together to raise money for the Muscular Dystrophy Association (MDA). I wanted to pass this information along to you all and ask for your help in this extremely important venture.

For those who maybe do not know, Leighanne and Roman have two children, Nikolai and Sasha. Several years ago Sasha came along to my Martial Arts School where I noticed he had a couple of tell tale signs of a possible neuromuscular condition. After several banks of tests it was finally confirmed that Sasha had Duchennes Muscular Dystrophy. This a very debilitating disease where the major muscles slowly stop functioning, leading to inability to walk, then to use the arms etc. Normally the progression takes several years. I first met Sasha 3 years ago, at that time he was a great kid who thought fighting and kicking his Dad was the best thing on earth. He is now a great kid in a wheelchair with rapidly dwindling ability to use his arms.

In an effort to raise money for the MDA Leighanne is taking $1 donations. Every dollar donated gets a chance to make a difference to someone’s life. It also gets you a chance to win one of 4 complete aquaria set ups. There are 4 58g tanks, stands, hoods and lights to be won. Two come with a CPR backpak and 2 come with an emperor filter.

I emplore you all, please make an effort to drop a dollar or two in to the jar in her store. All money raised goes to the MDA. In the past COMAS has stepped up to the plate and gone above and beyond to help others, lets do it again.

Details, on Leighanne’s website are here:

http://www.okcfishlady.com/specials.htm
 
I am very sorry to hear about Sasha's condition. I have this disease in my family also, and it is heartwrenching to watch to say the least. I have knocked doors for MDA every year since i was 8, and currenly have a jar set up at the tattoo shop that i hang out at that is filling way faster then i expected. I know times are tight for a lot of people, but if every American were to give only $1, that would be 300 million dollars to help find a cure and to help get equipment like Sasha's wheelchair. Everyone should give what they can even if it's only $1. Maybe put a jar up at the meetings even. It's the best money you will ever spend, and MDA really does use that money to help children and adults that are stricken with this horrible disease every day. It's not just going in some fat cat's pockets. Give until it hurts, then take 2 advil and give a little more.
 
Wow I read what Leighanne and Roman wrote on their site ... Man the tears were just rolling down.....She put it into perspective for me! MDA can count on the Ducks for support this year and every year their after!

Wayne
 
Thats rough....sounds alot like my story I have friedreich's ataxia( a type of MD ) anyways I am sure Mom and I will donate.

Bil was here
 
Thank you Bill, and to all who will help this very deserving cause.

If people want, I will go and get a bunch of tickets to have here next saturday. If you would like me to pick tickets up for your $1 dontaion, PM and I will swing by Leighannes before the meeting.

Paul.
 
Back
Top