The 125 process has begun... Pictures!

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How would the tracheotomy help his lung function? That doesn't seem to jive to me, but as an operation goes, wouldn't that be an easier one compared to the partial lobe removal?

Did you see the program on a couple nights ago about living to 150? One of the segments was about some doctyors that grew a heart from stem cells. Totally bizzarre, but they say that they will be able to grow lungs with zero rejection rate sometime soon.
 
The trach wouldn't help his lung function but we could suction him out whenever he plugged up. That might be an easier operation but the lasting infection rate and care would not be good. Even normal house dust in a tach can cause death.

I saw a small part of the program. I saw something about them growing a heart from a single cell. I didn't see the part about growing lungs. If we can buy our time until then that would be AWESOME! Russell and others like him could have a whole new lease on life!
 
Good news and bad Micki, my heart goes out to you. They say the pulmo vests are very good at what they do. The doctors at Birmingham have alread told us thay Jaylee will be fitted with on sometime in her teenage years. Hopefully by then we will make more strides in cures and treatments.

I know Russell would like to move home so he can be back to normal, hopefully you can get him back on track so he can.

I missed the program ya'll are talking about, that would be such an awesome thing for people that need new body parts. Hopefully we will have a breakthrough in the near future.

We're keeping you in our thoughts and prayers Micki, hang in there WonderMom!
 
Miki---I too just found this thread and could not stop reading it from page one to 37.
The first thing I did after reading it was go downstairs, get down on the floor and hug my three dogs---one is a lab that looks identical to yours and is 9 years old.
The next thing I did was call my four grandkids(5 but one was just born so I doubt he understood me) and told them I loved them along with my daughter and son.
As a cancer survivor myself, I know a little bit about true courage and the power of postive thinking.
You are definetly demonstrate both. Everyone has tragedy in their lives but the way you handle it is a window into who you are and what makes you a survivor.
You are definetly someone I am glad I had the chance to know briefly and in cyber space but it still is worthwhile ,sobering, yet rewarding.

I wish you and your family well and I am sure with your strong faith things will work out to the good

Your tank build thread is fabulous--a learning experince for all--I am going to add it to this thread in hopes that others will learn from it and most importantly for others to see what wonderfull human beings make up this great site.

http://reefcentral.com/forums/showthread.php?s=&postid=12055086#post12055086

Sincerely,
Scott
 
Johnny, I've heard good things about the pulmo vest as well. I'm hoping this will be the ticket for Russell. Why they have to wait until Jaylee is in her teen age years to start the vest? Do they think she won't need it until then? How is she doing?

Thanks for the compliment but I don't think I qualify as wonder Mom, I think anyone else would be doing the same thing for their child. :) Thank you again for your thoughts and prayers that is what is pulling us through!

Scott, Congratulations on being a survivor!!! Thank you for taking the time to read the thread! I'm glad you were moved to appreciate your family and dogs. That is certainly something I have learned over the years. The small things in life are sometimes the biggest! It's amazing the "friends" that are made and never met and yet they somehow mean as much or sometimes more than those we have met. The support on this site and others is unreal.

Thank you for adding my thread to yours. The goal of the thread was to help others learn what worked and didn't work with my tanks. I had not idea it would eventually take on a different meaning. I'm hoping to someday in the near future have some things to say about my tank and not just the craziness in my life. :)
 
Hi again Micki ;). I haven't been able to go to any of the Doctor's appts. with Jaylee yet, so a lot of questions don't get asked :(. One of the problems may be her size also, she is 8 months old(well almost) and just 10 pounds still. It's a constant battle to keep her gaining weight now. In this day and age of all fat free....... we literally add fat to every thing she eats bottles included. She is actually doing great though, other than being about 3 or 4 months behind developmentally. The doctors all say that is normal and she will catch up just slowly. She's a doll literally, the kids at her brothers daycare think she's a real doll "but alive!" ;)

Oh and when I have her, she doesn't want to go to anyone her Mom or my wife included hehehe.

And sooner or later we would like to hear about your tank, did you decide to keep it up for now?? I know times are tough for you hang in there.
 
Hi Johnny, Hopefully you will get to become a part of Jaylee's process with the appointments etc. We used to have to add extra calories to Russell's bottles as well.

Russell has had several great days! He has not used his oxygen during the day at all in the last 5 days and his sats are staying up!!! He got his vest kit on Thursday and guess what everything came but the actual vest! They over nighted it and we got it yesterday. He has used it 3 times so far and seems to be fine with it. It isn't really making any differences in his mucus output in his lungs but they said it could take up to 6 weeks to really kick in. Especially if there is a lot in the lower lobes or if the mucus is thick and sticky. Johnny here is the web site of the vest if you are interested. www.thevest.com If you look around the site there are some videos that show how it works. There's also a kids corner section that talks a little about kids using it. I just about fell over when they told me the price... $16,000.00!!! Yes Sixteen Thousand! They said compared to each hospital stay which is around $20,000.00 to $40,000.00 at an average of twice a year most insurance companies would rather pay the $16,000.00. They also have grants and programs to help folks out if need be. A friend of mine at work has a granddaughter WIH CF. They were told she would be fitted with the vest when she is around 3 years old.

There's no one like a Papaw! ;)

As for my tanks, they are still up and running. Just neglected a bit. The rock in my reef tank where my GBTA has lived for 4 years fell off. How or why? who knows... But the anemone ended up splitting and now I have 3 of them! After I put the rock back in it's place the original anemone stayed there. The second one is in an ok place but the third one has decided to venture. I may have to remove that one. My poor clowns were so confused as to which anemone to go to! Sometimes they are both in the same one and sometimes they are each in a separate one.
 
sounds like good news. It can be a little scary checking in on your posts!

As far as the GBTA goes, my clowns host in one and regulary visit the other. They seem to "provide food" primarily to the one they are hosting in full-time though. No reason to keep three. I had 3 and gave one away. Srread the love! :)
 
<a href=showthread.php?s=&postid=12313636#post12313636 target=_blank>Originally posted</a> by jnarowe
sounds like good news. It can be a little scary checking in on your posts!

As far as the GBTA goes, my clowns host in one and regulary visit the other. They seem to "provide food" primarily to the one they are hosting in full-time though. No reason to keep three. I had 3 and gave one away. Srread the love! :)

Thanks Jonathan, it seems like good news finally... :) I have given away so many anemonies over the past 4 years! My original anemone has probably had over 25 babies/grandbabies/great grandbabies now! I really only want 1 but it will be a matter of if I can get to eother one of the other two to get them out.
 
<a href=showthread.php?s=&postid=12313721#post12313721 target=_blank>Originally posted</a> by gkarshens
Good news Micki! I hope it keeps coming!

Thanks Gabriel! I'm hoping it continues as well!
 
Thats great news Micki, I'm glad his O2 is staying up now. I may bet the chance to go to the DR's I'm not sure, it depends on the scheduling. They have to go to Birmingham, about 90 + miles away for them. So when is Mom gonna let Russel go home? I know he's anxious and your scared ;).

Well at least you have 3 'nems now, not a mess. That could have been so much worse for your tanks. I'm glad you still have them up and didn't break them down, that would have been so sad, but understandable.

Oh and I'm with Jonathan, ruh-roh, I Hope Mickeh has good news today.......................

I hope things keep looking up for you and Russel, good to hear from you.
 
First Read, Your tanks are very nice, great work! Im sorry to hear about the problems your son has been having and i hope he continues to get better and stronger. :thumbsup:
 
I gotta say I just joined this site, and I was quickly skimming through this thread, and this site is wonderful. The people on here that give all the support they can to Micki is incredible. Obviously in just the life of the thread she has had a tremendous amount of hard times but with people like we have here on this forum makes times a bit easier. I'm very happy with the quality of the people on this site. I know I'm a new guy here and what I say might not mean much to others, but I have never seen a site so caring about other people.

On a lighter side, I skimmed through your thread Micki and your tank is great, when I get the time I'm going to read up on everything so I can learn how to create a tank like yours. I have less than a year of salt water experience and I learn new things everyday.
 
Good to hear the good news Micki. I hope the insurance company comes around for you guys. It's not fair to be fighting them for money at such a time.
 
<a href=showthread.php?s=&postid=12314079#post12314079 target=_blank>Originally posted</a> by mauls
I gotta say I just joined this site, and I was quickly skimming through this thread, and this site is wonderful. The people on here that give all the support they can to Micki is incredible. Obviously in just the life of the thread she has had a tremendous amount of hard times but with people like we have here on this forum makes times a bit easier. I'm very happy with the quality of the people on this site. I know I'm a new guy here and what I say might not mean much to others, but I have never seen a site so caring about other people.


You may be new but what you say and add is important to this site:smokin:
 
kar93, thank you! mauls, I couldn't agree more! There are some great supportive people here! Marc, Thanks! Chris, I'm sure it will work out some how. It has to. :) capn_hylinur, You are right!

We had to take my Mom to ER tonight. In December of 2006 she had triple bypass surgery. She has done great until recently. Her heart goes in and out of A fib. I noticed at church this morning she seemed short of breath so I told her I was going to bring some of Russell's oxygen to her house and check her out. When I got there she was asleep. Upon waking up she was very short of breath. My Dad had been trying to convince her since last night to call her cardiologist. (Of course I didn't know that until this afternoon). Soooo, I said whats the number we are going to call the DR.! I had the Dr. paged and let Mom talk to him. I only hear her end of the conversation which goes something like this... uh huh, yes, yes, ok, do you think that's really necessary? Well if you're sure, ok. She hangs up and says well I knew it, he wants me to go to ER. (I already knew he would say that based on her symptoms but I wasn't even going to go there). He said not to go to our local hospital because they won't do anything for you there go straight to Dayton. So I take Russell back to our house while they head to Dayton. By the time I got to the hospital, they had her in triage and getting ready to put her in an ER room. I'm thinking this is awesome! So fast!!! Well... She is telling them why she came in, because of shortnesee of breath oh and I've had a lot of tightness in my chest since yesterday! My Dad and I just looked at each other. she had not said a word to either of us abut that! They did the necessary labs and EKG etc. contacted the cardiologist on call and decide to admit her. The nurse tells us the cardiologist has to be the one to come in and admit her. So we wait... and we wait... and we wait... Finally we see him there! He is in the room across the hall great she is next! Well, he takes that patient into emergency surgery and won't be back to admit any of the other patients (I guess there are several) until he is done with the surgery. the nurse tells us it will be at least 2-3 hours after that until she is actually in a room! By this point my Dad is LIVID! He has a talk wth the ER DR. and the nurse and tells them just what he thinks of their protocal and by the way could you tell me why the cardiologist was at the nurse station laughing and joking around when he could have been admiting patients? (Earlier the nurse had already told us she just wanted to go out and tell him to get to work !) So, I decided to come home Dad stayed and I'm going back at 7:00 to hopefully see her regular cardiologist.

On a good note! Russell has been using the vest machine and so far still not having to use oxygen during the day! What a blessing!!! For those that have been praying thank you and please continue!

Now that I've vented my frustration I think I'll go to bed. I'm sure my husband will be glad to hear that you all got to hear me vent instead of him. :) I don't think I'll wake him up...
 
<a href=showthread.php?s=&postid=12322774#post12322774 target=_blank>Originally posted</a> by Micki
kar93, thank you! mauls, I couldn't agree more! There are some great supportive people here! Marc, Thanks! Chris, I'm sure it will work out some how. It has to. :) capn_hylinur, You are right!

We had to take my Mom to ER tonight. In December of 2006 she had triple bypass surgery. She has done great until recently. Her heart goes in and out of A fib. I noticed at church this morning she seemed short of breath so I told her I was going to bring some of Russell's oxygen to her house and check her out. When I got there she was asleep. Upon waking up she was very short of breath. My Dad had been trying to convince her since last night to call her cardiologist. (Of course I didn't know that until this afternoon). Soooo, I said whats the number we are going to call the DR.! I had the Dr. paged and let Mom talk to him. I only hear her end of the conversation which goes something like this... uh huh, yes, yes, ok, do you think that's really necessary? Well if you're sure, ok. She hangs up and says well I knew it, he wants me to go to ER. (I already knew he would say that based on her symptoms but I wasn't even going to go there). He said not to go to our local hospital because they won't do anything for you there go straight to Dayton. So I take Russell back to our house while they head to Dayton. By the time I got to the hospital, they had her in triage and getting ready to put her in an ER room. I'm thinking this is awesome! So fast!!! Well... She is telling them why she came in, because of shortnesee of breath oh and I've had a lot of tightness in my chest since yesterday! My Dad and I just looked at each other. she had not said a word to either of us abut that! They did the necessary labs and EKG etc. contacted the cardiologist on call and decide to admit her. The nurse tells us the cardiologist has to be the one to come in and admit her. So we wait... and we wait... and we wait... Finally we see him there! He is in the room across the hall great she is next! Well, he takes that patient into emergency surgery and won't be back to admit any of the other patients (I guess there are several) until he is done with the surgery. the nurse tells us it will be at least 2-3 hours after that until she is actually in a room! By this point my Dad is LIVID! He has a talk wth the ER DR. and the nurse and tells them just what he thinks of their protocal and by the way could you tell me why the cardiologist was at the nurse station laughing and joking around when he could have been admiting patients? (Earlier the nurse had already told us she just wanted to go out and tell him to get to work !) So, I decided to come home Dad stayed and I'm going back at 7:00 to hopefully see her regular cardiologist.

On a good note! Russell has been using the vest machine and so far still not having to use oxygen during the day! What a blessing!!! For those that have been praying thank you and please continue!

Now that I've vented my frustration I think I'll go to bed. I'm sure my husband will be glad to hear that you all got to hear me vent instead of him. :) I don't think I'll wake him up...

holy cow--when is it going to stop Mikie

Your hospital system and er doesn't sound any better then others--totally frustrating at times
 
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