How not to build a 750/1500 gallon build thread-Khaosinc 3/5/71-8/30/11

khaosinc said:
hi, this is tink.
k is at the hospital having a TEE test done because his doctor is concerned he might have endocarditis. i'm pretty much sitting by the phone as we speak waiting for an update.
i thought i'd update you guys and wow, the encouragement in these posts is really nice. he's having a hard time not getting discouraged so i appreciate you all talking to him this way. i really hope he doesn't lose his passion or fight and it's nice to know that even though i don't know you in "real life" you guys are behind me on that.
Click to expand...

Lose his will to fight? We are talking about K here. We have watched him rip apart portions of his house to build his monster tank. Sometimes using a broadsword to perform several construction efforts. I just hope he doesn't give the doctors too hard of a time.:uzi:

Thoughts and prayers go out from Gilbert, AZ. Hang in there K.
 
Tink here again.
I'm getting ready to head over to the hospital.
Hopefully we should have the latest results of tests so K can make the informed decision of whether he wants to go through painful surgeries or come home to live out his days peacefully (which he's actually considering). I hope he wants to fight or by some miracle the doctors and him can come to some kind of compromise. With all the pain he's gone through I don't blame him for considering it and we need to respect his wishes but wow the thought of making that kind of decision is quite surreal.
Thanks for the prayers, keep em coming.
 
khaosinc said:
Tink here again.
I'm getting ready to head over to the hospital.
Hopefully we should have the latest results of tests so K can make the informed decision of whether he wants to go through painful surgeries or come home to live out his days peacefully (which he's actually considering). I hope he wants to fight or by some miracle the doctors and him can come to some kind of compromise. With all the pain he's gone through I don't blame him for considering it and we need to respect his wishes but wow the thought of making that kind of decision is quite surreal.
Thanks for the prayers, keep em coming.
Click to expand...

Prayers sent for both Khaos and Tink.

While I respect the medical profession, I think it is also true that sometimes what is medically the "correct" decision (i.e. best odds for recovery) is not necessarily the best decision as a whole for the person. I had a close friend that they operated on who they should have left alone. He was never able to recover and his quality of life, such as it was, was way better before the operation than after (and that was the likely outcome).

Likewise, I knew another person with MS. Medically they insisted they needed to insert a tube to keep his airway open. They stated that his refusing treatment was tantamount to suicide (I personally think it should have been malpractice to state things that way). He refused the treatment and lived for quite sometime after wards, again with better quality of life than if he had accepted treatment. I recall this vividly because I had to give spiritual council to his son who was understandably quite distraught with what the medical personnel were saying about his dad.

Khaos and Tink - please don't give up hope. There is always hope both in this life and in the life to come. Keep fighting.

But I personally will absolutely understand the decision to make that fight either with the medical advice being given, or apart from it.

My grandfather was opened up for stomach cancer. They sewed him backup as hopelessly terminal and stated he had at most 6 months to live. Many years later he died of a heart attack. As it turns out, the same Dr. that had sewed him up did the autopsy. No cancer was to be found. He could not understand it. Miracles do happen.

God Bless.
 
Oh My Gosh!!! I'm so sorry for all that you two have endured. I know it's his decision, but I can't imagine not being able to see the blue, blue sky overhead or how green the grass and the the leaves on the trees are. But I know it's an entirely different thing when he's in pain every day. Hang in there DUDE!!! We have but one life to live.

Carpe diem
 
Tink here emailing from the hospital waiting room computer in the cardiac unit--
Update on K:
He has just agreed to surgery after a good talk with the surgeon.
They are trying to get him in ASAP, the valve needs to be completely removed and replaced. Could be possiblly as early as tomorrow, we are waiting for confirmation from scheduling.
He is of course very discouraged but I'm proud he's ready to fight. They are doing some last minute scans and then I imagine will begin prepping him for surgery. A hurry up and wait kind of thing.
Thank you for all your thoughts. Will update when I can. For now, I am just keeping him company here at the hospital and making sure they give him his mellowing medication so he doesn't go and change his mind!
 
i dont post here much but after reading the whole thread hope you both all the best, thats a lot of bad luck for one person :(
 
Well you know it is bad when one of the best cardiac surgeons in the country tells you it'll be a miracle if he survives tomorrow's surgery and he's never done anything this extensive before.
To sum it up--
1) The surgery will be MINIMUM 12 hours IF it all goes "smoothly"
2) They are going to scoop out the sick/dead parts of his heart that resemble raw ground meat and then get human and pig parts and try to put it all back together again and see if it'll function..which is a big MAYBE
3)his metal plate holding his sternum together will be removed because it will attract infection as well with this immune disease he has and so they won't be able to close him up..and plastic surgery might have to figure out skin grafts so he's not open to the world
4)he'll never work again
5)he'll be in intensive care for at least a month
6)oh and that staph infection last summer around his heart where we opened him up and kept him open and you could see his insides move around with each breath? where he was screaming in agony and you could literally see his guts being held in with saran wrap? well that was NOTHING compared to what's in store...IF he lives.

i feel like my hearts been ripped out and handed to me.

-Tink
 
My prayers are with you guys Tink. Not a whole lot a stranger can say other than I wish you and him both the best of luck and plenty of strength to make it through.
 
I'm so sorry to hear that Khaos will be facing such a severe surgery/recovery . I know that he has Tink to be there for him, but I hope she has a good support system as well. It is extremely difficult and emotionally taxing to be a caregiver for someone. Please know the thoughts and prayers of many here on RC are with the both of you at all times. We appreciate the updates. Best of luck.
 
Tink there are no words to comfort you at a time like this but god speed and nothing but love for you and he will make it throught you have to have faith in anything ( something)
Im sorry for your pain!!!!!!!
 
Thanks, guys.
My heart literally feels like it's breaking.
I've calmed down a bit as I realized I needed to eat, take my meds, and a bath. After that, I feel a little less like a train wreck. Not much but a little bit.
This surgery is his last hope. His choices were slow agonizing death at home or do this risky surgery and at least die trying if he doesn't pull through. They blocked off the whole day for him tomorrow and bumped all the other scheduled surgeries.
They take him to OR to prep at 5am. Cut into skin at 8am. Surgeon said he might be done by 8pm. Best case scenario. Could go well into the night.
I can't help wondering if I kissed him goodbye for the last time tonight.
-Tink
 
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